Rebecca and Hannah

It’s a difficult thing, to admit to yourself that you think there is something wrong with your child. It’s harder again to say that statement out loud to your loved ones or Health Professionals. It becomes a battlefield when those professionals repeatedly dismiss your concerns. It took strength I didn’t know I possessed to persevere for 18 months in the face of accusations of Munchausen’s by proxy and statements such as “I can assure you Mrs Pender, there is categorically nothing wrong your child, she’s just lazy” Hannah’s primary diagnosis is Inv Dup Del 8p, a rare genetic condition with only 65 known affected worldwide. She also lives with a severe learning disability, Epilepsy and complex arachnoid cysts in her pineal gland. She is also a daughter, a sister, a granddaughter and Nanas Hannah. She is a cousin, a friend, a student and a teacher. She is a bringer of light in what sometimes seems like quite a dark world.